Weekends in the hospital, and especially Saturdays, are pretty quiet. Today has been a quiet day. They started giving Patrick replacement fluid to keep him hydrated in his g-tube instead of by IV. So far he seems ok with it.
Patrick definitely overdid yesterday and has needed a day to rest and recover. So we took naps and he played with a volunteer while we grocery shopped and we went to the rooftop garden, then came back in because it was too windy. This evening he’s doing watercolors in bed because he is determined to play, even though he is really feeling too sore to do it.
And that’s about all that happened today. I’m skipping education tonight to go snuggle my little boy because his belly hurts.
Patrick Hoopes 