Skip to content

Life with Short Gut Syndrome, Transplant, Brain Injury & a whole lot of adventure.

Home
Our Virtual Flat Stanley Project
Who is Patrick?
Patrick in the news

IMG_20150116_165722

This big flat swing is AWESOME for working on rebuilding Patrick’s core strength

Posted on January 20, 2015 Full size 3264 × 2448

Leave a comment Cancel reply

Δ

Post navigation

Published inTransplant Day 82 and golden tickets

Patrick’s COTA Campaign

Click here to for Patrick's COTA transplant campaign.

Hi! I’m Emily

In 2008 my husband Brian and I adopted an amazing little boy named Patrick. Patrick was born with Short Bowel Syndrome as a complication of gastroschisis. He received a liver-intestine transplant in 2014.

In addition to Short Gut, Patrick struggles with a brain injury, developmental delays, and food allergies. But in spite of all his challenges, Patrick faces life with excitement, happiness, and a twinkle in his eye.

This blog is about our journey together.

Find support

Short Gut Syndrome Family Support Group
Short Gut Support on Facebook
Short Bowel Syndrome Foundation
The Oley Foundation
Kids with Food Allergies

Make a Difference

Donate Life
Yes Utah

Categories

Categories

Tags

Posts by month

Posts by month

RSS Links

RSS - Posts
RSS - Comments

Home
Our Virtual Flat Stanley Project
Who is Patrick?
Patrick in the news

Patrick Hoopes Blog at WordPress.com.

Comment
Subscribe Subscribed
- Patrick Hoopes
- Already have a WordPress.com account? Log in now.