Transplant Day 82 and golden tickets

 

Daddy is back!! Brian got back into town Saturday evening. Patrick couldn’t have been happier. And we’ve stayed busy all weekend.

Mostly, we’ve been busy cooking. If December is the most charitable month that they see at the Ronald McDonald House, January is its leanest. This week only had a couple of dinner groups scheduled. But there are a lot of donated turkeys and hams left over from the Christmas season. So last week, after having pretty good success last week making a ham and having the rest of the house help make side dishes, they offered us a turkey.

Sunday, we Brian helped get a turkey in the oven, and let’s be honest, did more than me watching it to make sure it came out ok. And then yesterday, we went shopping and got ingredients for Brian to cook pasta for the whole house, too. I’m wondering if he’s frustrated with having cooked large meals for large groups of people his first two nights here.

But the food was really AMAZING. And right now, there are only a handful of families living in the house who don’t have kids at the hospital and so if someone is going to be cooking, it is going to be us. It feels good to know we’re helping other people with something that we knew makes such a big difference. And we like the company for dinner, too.

Grocery shopping was just one of our adventures yesterday, though. Because yesterday was a holiday, Brian suggested that we treat it like one. So we went to the zoo. It has been beautiful here the past few days. 50 degrees or better. And so the zoo, of course, was crowded on a day off of school. However, it also meant that there were a lot of animals outside which made for a fun and different zoo experience. We got to see bears and rhinos, which have been inside on our last few trips to the zoo. And since we have been going often, we didn’t feel like we were missing out on some of the more crowded indoor exhibits.

And then, since going to the zoo wore him out, Patrick came back and even willingly took a nap.

Today Brian had to work again. He goes to the computer room down the hall where he can video conference and code. We meet for lunch and then he’s off at dinner time.

Meanwhile, Patrick and I went to feeding therapy this morning. Today, we took some lunch meat ham and the goal was to get Patrick to swallow some of it. It actually worked and Patrick is really excited about wrapping cheese in ham now. He swallowed some ham sandwich, too.

Then, we went grocery shopping. Patrick’s been anxious to go back to the store with kid sized shopping carts. So we went today to pick up some of his staples and to let him spend his tooth fairy money.

That’s right, Patrick lost his second tooth this week. I have been worried. It was loose, but an adult tooth had grown in behind and it still wasn’t coming out. Well, he’s fallen in love with his electric toothbrush and brushing his teeth. And a couple of nights ago, he brushed that loose tooth right out. It took some hunting and sweeping to find the tooth, but we did find it. And it only took a little convincing to persuade him that brushing his teeth wouldn’t knock them all out.

The other new thing this past few days is that there is another kindergarten age girl in the house right now. Her mom has been trying her best to keep her caught up with school work. We decided to try to combine forces. So while we wait for dinner each night, I bring down some of our mommy school things and they study together. They both are staying and working longer this way.

In other news, Patrick’s ostomy incision finally healed enough to not need to pack it with gauze anymore. Just cleaning it and covering it with a bandaid. And that means he can shower. He’s not too excited, but I feel like he gets so much cleaner that way than sponge baths.

Tonight is the first we’ve tried going without a nap since Daddy got into town and I’m questioning my choice. Patrick has been very grumpy. But it’s a tricky tradeoff between sleeping at night and being nice during the day. And I haven’t found a balance that makes him feel good enough to ignore the side effects of his medications. He’s either too sleepy or not sleepy enough and either way he is usually either angry or bouncing off the walls.

I keep thinking that we are going to finally get a routine and get past this. Sometimes I think that we just need to hang on and get home and then things will get better.

But in church this week, they said something that really struck a chord and I’m trying to put it into practice. The speaker reminded me that always waiting for something next to be happy doesn’t usually result in being happy. It just means always waiting. As Dieter F. Uchtdorf taught:

So many people today are waiting for their own golden ticket—the ticket that they believe holds the key to the happiness they have always dreamed about. . .

There is nothing wrong with righteous yearnings—we hope and seek after things that are “virtuous, lovely, or of good report or praiseworthy.”4 The problem comes when we put our happiness on hold as we wait for some future event—our golden ticket—to appear. . .

The happiest people I know are not those who find their golden ticket; they are those who, while in pursuit of worthy goals, discover and treasure the beauty and sweetness of the everyday moments. They are the ones who, thread by daily thread, weave a tapestry of gratitude and wonder throughout their lives. These are they who are truly happy.

Read the full text of this amazing talk here.

So today, when I feel homesick, I’m checking myself and trying to be grateful and productive and happy in the moment I have been given.

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