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Patrick Hoopes

Life with Short Gut Syndrome, Transplant, Brain Injury & a whole lot of adventure.

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Patrick Hoopes
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Posted on July 26, 2013 Full size 600 × 173

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Patrick’s COTA Campaign

Click here to for Patrick's COTA transplant campaign.

Hi! I’m Emily

In 2008 my husband Brian and I adopted an amazing little boy named Patrick. Patrick was born with Short Bowel Syndrome as a complication of gastroschisis. He received a liver-intestine transplant in 2014.

In addition to Short Gut, Patrick struggles with a brain injury, developmental delays, and food allergies. But in spite of all his challenges, Patrick faces life with excitement, happiness, and a twinkle in his eye.

This blog is about our journey together.

Find support

  • Short Gut Syndrome Family Support Group
  • Short Gut Support on Facebook
  • Short Bowel Syndrome Foundation
  • The Oley Foundation
  • Kids with Food Allergies

Make a Difference

  • Donate Life
  • Yes Utah

Categories

Tags

  • ADHD
  • adoption
  • anesthesia
  • back to school
  • birthdays
  • birthparents
  • brain injury
  • Broviac line
  • business trips
  • central lines
  • Christmas
  • clinic visits
  • daddy
  • development
  • Dr. Jackson
  • enteral feeding
  • faith
  • family
  • family fun
  • fevers
  • food allergies
  • friends
  • funny things Patrick did
  • Granite School District
  • gratitude
  • growing up
  • homebound school
  • home health care
  • hospital stays
  • IEP
  • immune suppression
  • infections
  • intestinal transplant
  • IV's
  • LDS church
  • learning to eat
  • life's little setbacks
  • life after transplant
  • life as a special needs mom
  • liver woes
  • milestones
  • miracles
  • motherhood
  • multivisceral transplant
  • NICU
  • nurses
  • occupational therapy
  • organ donation
  • physical therapy
  • PICC line
  • PICU
  • prayer
  • Primary Children's Hospital
  • proud moments
  • radiology
  • Ronald McDonald House
  • scary moments
  • school
  • Seattle
  • Seattle Children's Hospital
  • short gut 101
  • special education
  • special needs parenting
  • spleen
  • summer
  • surgery
  • tests
  • the Church of Jesus Christ of Latter Day Saints
  • the ER
  • the Nebraska Medical Center
  • TPN
  • transplant
  • travel
  • trials and triumphs
  • University of Nebraska Medical Center

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