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Life with Short Gut Syndrome, Transplant, Brain Injury & a whole lot of adventure.

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With time to kill between doctor’s appointments, Patrick and I stopped in at the museum at Fort Douglas

Posted on April 6, 2016 Full size 3264 × 2448

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Published inMarch, or in other words, take that MacBeth

Patrick’s COTA Campaign

Click here to for Patrick's COTA transplant campaign.

Hi! I’m Emily

In 2008 my husband Brian and I adopted an amazing little boy named Patrick. Patrick was born with Short Bowel Syndrome as a complication of gastroschisis. He received a liver-intestine transplant in 2014.

In addition to Short Gut, Patrick struggles with a brain injury, developmental delays, and food allergies. But in spite of all his challenges, Patrick faces life with excitement, happiness, and a twinkle in his eye.

This blog is about our journey together.

Find support

Short Gut Syndrome Family Support Group
Short Gut Support on Facebook
Short Bowel Syndrome Foundation
The Oley Foundation
Kids with Food Allergies

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Yes Utah

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Our Virtual Flat Stanley Project
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Patrick in the news

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