Skip to content

Life with Short Gut Syndrome, Transplant, Brain Injury & a whole lot of adventure.

Home
Our Virtual Flat Stanley Project
Who is Patrick?
Patrick in the news

Previous Image

Next Image

IMG_20150629_135020

It was hot – we sat and took lots of breaks

Posted on July 9, 2015 Full size 3264 × 2448

Post navigation

Published inMini summer

Patrick’s COTA Campaign

Click here to for Patrick's COTA transplant campaign.

Hi! I’m Emily

In 2008 my husband Brian and I adopted an amazing little boy named Patrick. Patrick was born with Short Bowel Syndrome as a complication of gastroschisis. He received a liver-intestine transplant in 2014.

In addition to Short Gut, Patrick struggles with a brain injury, developmental delays, and food allergies. But in spite of all his challenges, Patrick faces life with excitement, happiness, and a twinkle in his eye.

This blog is about our journey together.

Find support

Short Gut Syndrome Family Support Group
Short Gut Support on Facebook
Short Bowel Syndrome Foundation
The Oley Foundation
Kids with Food Allergies

Make a Difference

Donate Life
Yes Utah

Posts by month

RSS Links

RSS - Posts
RSS - Comments

Home
Our Virtual Flat Stanley Project
Who is Patrick?
Patrick in the news

Patrick Hoopes Blog at WordPress.com.

Comment
Subscribe Subscribed
- Patrick Hoopes
- Already have a WordPress.com account? Log in now.

Leave a comment Cancel reply